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Welcome Maine Families and Community Partners,

Family Voices: Heart of Change!

This summit is a collaborative partnership between the Maine CDC and the Maine Parent Federation, bringing together families, professionals, and community organizations to learn, connect, and inspire meaningful change.

March 17th 2026

9:00 am – 2:30 pm

Augusta Civic Center

76 Community Drive, Augusta Maine 04330

Please Click Here to Register
Exhibitors:  AT MAX CAPACITY: Exhibitor Sales Closed- Thank you for your interest!
Participant: $20 per person

8:30 – 9:00 – Check-in at Welcome Table

9:00 – 10:00 – Keynote with Katie Novak

View Katie’s Slide Deck Here

Katie Novak Ed.D.
Katie Novak, Ed.D., is an internationally renowned educational consultant, adjunct instructor at the University of Pennsylvania, best-selling author, podcast host, and founder of Novak Educational Consulting. With over 20 years of experience in education, Novak has authored 16 books, including best-sellers UDL Now!, The Shift to Student-Led, and the newly released Elevating Educational Design with AI. With a global reach spanning 33 states and 28 countries, Novak’s guidance has significantly shaped educational practices on an international scale.

10:00 – 10:15 – Break

10:15 – 11:30 – Breakout Session

(Choose 1)

Choice A

Partnering for Success: Helping Your Child Get the Support They Need

Presented by Allison Wiest, Dylan Campbell, Farrah Elshoff, and Mary Watson

Presented by Allison Wiest, Dylan Campbell, Farrah Elshoff, and Mary Watson

This session highlights practical, real-world strategies families can use to feel more equipped and empowered when working with school systems and outside providers to support their child’s learning and growth. We will focus on how parents can partner with their child’s school team and other systems of care to ensure their child receives coordinated and child-centered support and to ensure their child is experiencing success in and out of school. Participants will explore best practices, coordination tools, and effective advocacy approaches grounded in lived experience, with takeaways they can apply immediately.  

Dylan and Allison form MPF’s Training Department. Together, we create family-friendly trainings, resources, and support family engagement across systems of care. We work directly with youth and families on self-advocacy, transition planning, and systems navigation, as well as engage in state-level work that blends our lived experience with our professional roles. We are passionate about supporting families like ours and strengthening grassroots, community-driven change.

Our parent partners, Farrah Elshoff and Mary Watson, joined us to create this session and provide their experiences.

Farrah and Mary’s full bio can be found under the Parent Panel.

We hope to see you there!

OR

Choice B

Communicating With Confidence: Strengthening Caregiver Advocacy

Presented by Kasey McBlais, with Lisa Rancourt, and Vicky Fisher

Presented by Kasey McBlais, with Lisa Rancourt, and Vicky Fisher

This workshop is designed for parents and caregivers of children with disabilities who want to strengthen their advocacy skills and communicate with confidence. Participants will explore how understanding parental rights can support more effective advocacy and how to apply that understanding in ways that are clear, confident, and grounded in lived expertise.

Participants will engage in guided discussions and a collaborative activity to analyze the impact of language choice on advocacy efforts, as well as explore how collecting relevant data can enable caregivers to articulate their needs with greater clarity and effectiveness. Caregivers will leave with practical tools to communicate with purpose and with evidence to strengthen their advocacy efforts.

Kasey McBlais is a dedicated advocate, parent, and professional supporting children and families. A Rochester Institute of Technology graduate, she began her career with AmeriCorps in rural Montana and has since worked in group home management, foster/adopt recruitment, and now serves as an Information Specialist with Maine Parent Federation. As a mother to a neurodivergent son and neurotypical daughter, Kasey advocates for families through public speaking, legislative engagement, and leadership. She is a Maine State Parent Ambassador alumna, 2024 NH-ME LEND graduate, and has collaborated with organizations such as Zero to Three, FamiliesUSA, and Maine AEYC to advance family-centered policy.

Parent Partners Lisa Rancourt and Vicky Fisher joined Kasey to create this session. Lisa and Vicky’s full bios can be found under the Parent Panel.

11:30 – 12:00 – Break -Get Lunch, settle into tables for presentation

12:00  – 1:00 – Care Coordination: A Parent Panel

We would like to give a special thank you to our parent panelists.

Vicky Fisher
Vicky Fisher is a disabled mother and grandmother from Gardiner, Maine, who brings both professional expertise and lived experience to her advocacy work. With a background in mental health and early childhood education, she has hands-on experience managing her own small childcare facility. Since 2021, Vicky has been the full-time caregiver for her grandson with special needs, navigating complex systems and services on his behalf. She serves on the Board Directors of the Autism Society of Maine and was recently appointed Chair of its Education Committee. Vicky uses her knowledge, leadership, and lived experience to advocate for meaningful supports for her grandson—and to empower other families on their own advocacy journeys.
Mary Watson
Mary Watson is a Human Resources professional with 22 years of experience mainly in the manufacturing industry. She has served on the board of her local Society of Human Resources Management (SHRM) chapter. Additionally, she serves on the Program Advisory Committees for several welding programs across the state as well as the School to Career High School programs in the Midcoast Maine area. Mary is a big proponent of Workforce Readiness and is of service to her community. Her biggest area of service, however, is to her son Alex for whom she advocates for medically and educationally. She is a proponent of ensuring her son gets the treatment and education that he deserves and needs. Mary resides in Midcoast Maine with her son Alex, their dog Hank, and their cat Oreo.
Farrah Elshoff
Farrah Elshoff is a passionate advocate and single parent of five neurodivergent teens and pre-teens. She will graduate summa cum laude in spring 2026 with her bachelor’s degree in Psychology/Communications from Waldorf University. Her background includes journalism, freelance marketing, and professional writing. While living in rural Iowa, she served as a Girl Scout leader and co-led a homeschool group. She now works as a Family Support Navigator with Maine Parent Federation, continues freelance writing, and plans to move into Case Management/Care Coordination after graduation. She enjoys fitness, hiking, and life in Northern Maine.


Farrah brings lived experience navigating special education, medical, mental health, and juvenile justice systems for her neurodivergent children. This has shaped her belief that every family deserves compassionate, steady, and individualized support.

Lisa Rancourt
Lisa Rancourt, PhD, earned her doctorate in Leadership and Organizational Change from Walden University. She previously worked as Advertising Manager for the Bangor Daily News. Dr. Rancourt is a current NH-ME LEND Trainee, a Family Support Navigator with Maine Parent Federation, and an alumna of the Maine State Parent Ambassadors program. She is actively involved in Scouting America as a Cubmaster and Merit Badge Counselor and also serves as a Special Olympics coach. She resides in Hermon, Maine, with her husband of 22 years and their two sons.

1:00 – 1:15 – Break

1:15 – 2:15 – Advocating & Coordinating Care for Children with Medical Complexity: A Clinician Perspective

Presented by Logan Murray, MD,  Dana Okin MSN, RN, CPN, CNL,  Amanda Payne, MSN, FNP, Jessica Rock, RN, BSN

This presentation highlights how clinicians in the MaineHealth Program for Children with Medical Complexity partner with families to navigate the challenges of care coordination and advocate for the needs of medically complex children. It emphasizes empowering parent voice, strengthening collaboration, and equipping families with practical tools to support effective advocacy across healthcare, community, and systems.

Logan Murray, MD
Logan Murray, MD is a board-certified Pediatric Hospitalist, Rotation Director for the Pediatric Hospital Medicine elective at MaineHealth Maine Medical Center, Co-Medical Director of the MaineHealth Program for Children with Medical Complexity and Pediatric Medical Director at MaineHealth Home Health and Hospice. 

 

Dr. Murray graduated from the University of Vermont Larner College of Medicine in 2006 and completed his Pediatric Residency (2009) and Chief Residency (2010) at Maine Medical Center. His research includes serving as principal investigator for a grant-funded study of novel techniques for vaccine-related communication in primary care. More recently, he has focused on children with medical complexity and was an Academic Pediatric Association Research Scholars Program Fellow for 2021-2024.

Amanda Payne, MSN, FNP
Amanda Payne, MSN, FNP, is a Nurse Practitioner with the MaineHealth Program for Children with Medical Complexity. She is also the coordinator for the MaineHealth Cleft Lip and Palate Program. She earned her BSN from the University of Massachusetts Amherst in 2006 and began her career at Franciscan Hospital for Children, sparking her passion for the care of medically complex children. Amanda has held inpatient nursing roles at Boston Children’s Hospital and Seattle Children’s Hospital before moving to Maine in 2011 where she joined Maine Medical Partners Pediatric Specialty Care. She completed her MSN–FNP in 2015 and has worked in school-based health and primary care before assuming her current roles. Amanda is an active member of the American Cleft Palate-Craniofacial Association. Outside of work, she enjoys time with her husband and three daughters, gardening, cooking, running, and exploring the outdoors.
Dana Orkin, MSN, RN, CPN, CNL
Dana Orkin, MSN, RN, CPN, CNL brings over 15 years of pediatric inpatient nursing experience to her role as a Pediatric Complex Care Navigator at The MaineHealth Barbara Bush Children’s Hospital. Driven by a deep commitment to children with medical complexity and their families, Dana has been a leader in care innovation—developing and piloting a dedicated complex care navigator role designed to ensure continuity and provide comprehensive support throughout the healthcare experience.

 

She holds a Bachelor of Science in Nursing from the University of New Hampshire and a Master’s in Clinical Nurse Leadership from Saint Xavier University. A proud member of the Pediatric Complex Care Association, Dana is a passionate advocate for family-centered care, striving to make sure families feel seen, heard, and supported as they navigate the often-challenging landscape of pediatric healthcare.

Jessica Rock, RN, BSN
Jessica Rock, RN, BSN, is the Practice Manager for the MaineHealth Program for Children with Medical Complexity. She earned her Bachelor of Science in Nursing from the University of Southern Maine in 2007, following a Bachelor of Science in Psychology. Jessica began her nursing career at The Barbara Bush Children’s Hospital, where she worked for nearly 13 years. She later served as a Clinical Educator within a large multidisciplinary ambulatory practice call center, where she developed comprehensive onboarding and training programs and provided ongoing education for nurses delivering telephone triage services. In 2024, driven by a desire to return to pediatric care, she joined the Complex Care team. Outside of work, Jessica enjoys spending time with her husband and two children, as well as her friends, honeybees, chickens, and dogs.

2:15 – 2:30 – Evaluations & Final Remarks.

Goodbye! Thank you!
This Summit is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) and the Office of Special Education Programs of the U.S. Department of Education. The contents are those of the author(s) and do not necessarily represent the official view of, nor an endorsement, by HRSA, HHS, or the U.S. Government.